You’re not alone. Hope Community is a place for families facing CDG-PMM2 to talk with people who have been through the same challenges, or are going through them right now, and to learn from each other. Posts can be read in your own language with the language menu. Read Jay Hebert’s story.
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Posts here are shared experience from other families, not medical advice. Please talk with your child’s care team before changing treatment. In an emergency, call your local emergency number.