What keeps this a safe, kind place for every family.
- Be kind. Every family’s journey with CDG-PMM2 is different. Offer support, not judgment.
- Share experience, not medical advice. Tell others what worked for your child, and encourage them to talk with their own care team.
- Protect privacy. Use a first name or nickname. Don’t post full names, addresses, medical record numbers, or someone else’s story without permission.
- No selling or fundraising for individuals without checking with the foundation first.
- Any language is welcome. Write in the language you’re most comfortable with; others can translate.
- Report, don’t argue. If something feels wrong, contact a moderator and the Hope Foundation team will review it.
- In a crisis, call your local emergency number. This board isn’t monitored around the clock.
- Members must be 18 or older. This community is for parents, caregivers, and adults affected by CDG-PMM2.